Welcome to The Monthly Memo

 July, 2016

The Arc of New Mexico Mission

Our Mission: The Arc New Mexico promotes and protects the human rights of people with intellectual and developmental disabilities and actively supports their full inclusion and participation in the community throughout their lifetimes.

The Arc is not an acronym; always refer to us as The Arc, not The ARC and never ARC. The Arc should be considered as a title or a phrase.

www.arcnm.org

Twitter:Arc of NM@TheArcNM

Facebook: The Arc of New Mexico

Donate Now: https://www.arcnm.org/donate-online/

Randy Costales, Executive Director

Self-Advocacy Planning in NM

On June 3 The Arc of New Mexico, brought together over 20 self-advocate leaders, supporters and funders to discuss ideas on how to create a comprehensive and sustainable statewide self-advocacy movement in New Mexico.   Attendees represented the following groups and organizations:  People First (PF) of Gallup, PF of Albuquerque, PF of Roswell, PF Anthony, PF of Las Cruces, Allies in Advocacy, The Arc, Parents Reaching Out, the New Mexico Department of Health – Developmental Disabilities Supports Division (DOH/DDSD), and the Developmental Disabilities Planning Council/Center for Self-Advocacy.  Funding for the meeting was provided DOH/DDSD.

On July 20 a second meeting was held to develop a collaboration plan with specific goals, strategies, assignments and timelines to achieve the goals.  Attendees created a Two-Year Vision that included the following elements:

*NM Allies is the central non-government organization at the core of the self-advocacy movement in New Mexico with a strong infrastructure with financial resources and paid staff

*People’s First chapters are active in every region.

*Our impact has grown through the effective, coordinated use of an outreach strategy that includes webinars and social media.

*The voices of self-advocates are heard and making a difference in the New Mexico legislature.

*A disability history curriculum is a funded reality in the public schools.

*We have developed the financial and expanded training and mentoring programs that are creating leaders and engaging youth.

*There is a significant increase in available transportation statewide with rural options.

The Arc Helping Families

We are the Garcia family and we live in Deming.  Recently we returned from the National Down Syndrome Conference in Orlando Florida, and we wanted to share our experience with you.  Last year we attended our first NDSC for the first time in Phoenix, Arizona - it was an amazing eye opening experience. 

The Arc of NM and the Arc’s NM Down Syndrome Fund is the reason why we were able to attend.  If we had not been connected or contacted by the Arc or another parent, who knows if we would still be wondering why or how our daughter was born with an extra chromosome.  My husband and I look at life completely differently now.  Being connected to The Arc and other parents has given us hope. 

This year’s NDSC conference in Orlando, Florida is proof that the Arc’s support is essential to families.  It confirms what we experienced last year.  The conference is like a huge family.  Our lives are happier now thanks to the resources and connections we have come across.  We don’t worry about small details.  We don’t take life for granted. 

Friday night at the conference was Super Hero night and families dressed up as Super Heroes.  It was a great time and we all danced the night away. Time with our “Super Hero” Shanmaree is precious.  When we are faced with an obstacle – it is not as difficult as it used to be.  That must be Shanmaree’s superpower; able to bring smiles to even the grumpiest of people, able to show you what is most important in life and able to make your heart laugh.  We are eager to help other families with what we have discovered and appreciate the connections and love. 

Another Story....

Hello my name is Gina Jasso.  Our family, including my son Arthur Don Jasso, was chosen to attend the National Down Syndrome Conference (NDSC) in Orlando, Florida.  I would like to thank The Arc for giving us the opportunity to attend this conference.  Being able to go to the largest conference for persons with Down syndrome has been a rewarding experience. I wish I had known about the NDSC a long time ago.   The earlier stages of development in Arthur Don’s life would have been helpful.  It seems like the more I get involved the more I learn about my son Arthur Don’s favorite activities.

 The seminars were very helpful and provided some much needed professional information for our future with Arthur Don. Small sessions and stories from other families have been so valuable. The Arc’s New Mexico Down Syndrome fund has made an enormous awareness for Down syndrome in New Mexico.  In Deming we have been working, volunteering and raising funds to attend this unique conference. Although this conference was extremely costly, all in all it was worth the time, effort and work we put forth to get here. 

Only some of the other moms can answer some of the questions I arrived with.  This experience has motivated me to work towards helping others who are less fortunate or one’s who don’t have hope, or just to be there for them when they have questions.

In the picture Arthur Don is a Star with the Star cast of “Born this Way”.  They offered photo opportunities and also autographs and mingled with the conference attendees.  Plus he got to SNAP a picture with J.T. (Born this Way’s D.J.) and Deandra Dixon (Jaimie Foxx’s sister).  This was the most wonderful opportunity for Arthur Don”.  It will live forever in his heart and we wish to thank The Arc of New Mexico.

ADA Celebration in Farmington

Support The Arc!

The Arc of New Mexico is part of the National Arc Movement that includes nearly 700 chapters around the United States.  Combined The Arc impacted over 1 million individuals and their families through direct supports, services, and advocacy.

In New Mexico hundreds of individuals and families are impacted through The Arc’s programs and services.  With your help, the Arc of New Mexico will continue to be a leader in advocacy and services for children and adults with intellectual and developmental disabilities.  There are several ways to give to The Arc:

Mail a check or make an on-line donation at https://www.arcnm.org/donate-now/

Make a United Way Contribution and designate The Arc

Donate stocks or bonds.  For more information contact Randy Costales at rcostales@arcnm.org.

Leave a bequest is a gift made to charity in your will or trust. One significant benefit of making a gift by bequest is that it allows you to continue to use the assets/property you may leave to charity during your life. Another benefit is that by making a bequest you are able to leave a lasting legacy for the work of The Arc.  Keep in mind that your gift can be for a specific amount, a percentage or some portion of the remainder (after family, relatives and friends have gotten their designated share).  For more information contact Randy Costales at rcostales@arcnm.org.

Set up a memorial gift for a loved one as a lasting tribute or to a family as an expression of sympathy.  Family and friends can be recognized with a gift in their honor.  This might be for a special occasion such as a birthday, anniversary, holiday, wedding, retirement, etc.

Donate gently used clothing, shoes and household items (Metro area).  For more information or to schedule a donation pick-up call 505-765-1975.